Today Lance and I went to UNC to see Seren's new digs and to meet with some of the medical team there. We were pleased with the environment and her nurses who had put her in a cute little cap. She was even unplugged from most of the monitors before we left so she got to have on her first clothes-a perfectly acceptable set of pale pink jammies!
We met with the ophthalmologist, the neonatologist and several fellows and residents in the NICU as well as the geneticist. Today Seren had an eye exam and an ultrasound on her sacral dimple and kidneys. We haven't received the full results of these exams but they seem to confirm the findings here in Raleigh. The geneticist didn't have great news for us but I did make him walk through which of her physical traits caused him concern from a genetic syndrome standpoint. They were actually a lot fewer than I thought he would say so that made me feel a bit better. The largest concern is her eyes which are also connected to the brain. Next week we will get an MRI of Seren's brain in order to determine if there are any malformations. We could use every prayer in the world that her brain is intact. This would remove a large hurdle for her and greatly improve her prognosis.
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