Seren's condition remains generally unchanged. Her seizures had slowed down but yesterday they started to come with more frequency again. We still aren't sure what to expect from her. She's six weeks old now and so it becomes more obvious each day that she isn't making the progress of a child without neurological problems. We are going to be able to have her seen by a doctor at Duke that specializes in children like Seren who are born with multiple congenital defects. This doctor is going to be able to help us ensure that Seren lives the most comfortable life possible. We have been told that Seren's life expectancy may be very short. However for the most part she also appears generally healthy so we also have to plan to make sure she gets every therapy possible. We want to give her the best chance at being able to interact with her environment on some level for the time she is with us. She is growing very well and is already out of newborn diapers. She's definitely able to absorb nutrition! G loves going to visit her and asks "see Baby Seren," quite a bit. Going to see her has become one of our regular outings and I'm glad everyone is kind enough to allow me to bring him to visit her.
I'd like to ask your prayers for one of my dear friends who is in labor today with her little boy. We met online through a group of concerned mothers who had pregnancies with potential complications. She has been an encouragement to me throughout my pregnancy and after Seren's birth. Her little boy has a heart defect that was detected prenatally and which may require surgery. Please keep this family in your prayers for a safe delivery and a healthy son!
Wednesday, May 27, 2009
Subscribe to:
Post Comments (Atom)
Hey Jennifer, thanks for the updates on your family. We love that G wants to go see Seren and just be with her. I suspect she can "sense" he is there and his love.
ReplyDeleteWe will pray for your friend. May God truly bless your weekend.
Hi Jennifer.
ReplyDeleteMaureen sent me the link to your blog. We as well met on BC CH board. You're strengh is inspiring! You and your family are in my prayers. These CH babies are truly miracles.
Jennifer- Chris and I want you to know we continue to say prayers for you, Lance little G and Seren. If there is anything we can do at all please, please let us know. Tara
ReplyDelete